UPDATE: Dr. Got the ENTIRE tumor (had advanced more then he had thought) and he said the rhinoplasty went great as well! BAD news: she's having a hard time nursing :/ as soon as she latches on she screams and turns her face and trys to pull at her nose! (Any body who knows our girl KNOWS she doesn't miss a meal, shoot she doesn't even miss a snack.) So her not wanting to eat... My heart feels absolutely BROKEN! Seeing her little nose all bandaged up and then hearing her cry... I hate seeing her like this. I HATE that I can't just fix it all for her and take all this pain away! :( AND if all that weren't enough... Being in this hospital only reminds me of being ROBBED of her first 2 weeks of life. I thought I had gotten over the entire NICU journey... But as it turns out... I haven't. I am still upset! Maybe it wouldn't be so hard if we could just catch a break! If getting prego wasn't a hard enough journey on it's own... Our complication FILLED pregnancy THEN emergency c sec and prematurity! :( I HATE that she has had to go through so much!! On a different note (because YES I am well aware I just complained and whined this entire entry) I am more proud then EVER to be Adisyn's mama! This baby is HONESTLY the strongest person I've ever met!! YET STILL she continues to defy ALL odds... She is such a miracle! I can't wait to see what God will continue to do in her life. Please remember to keep our baby bear in your prayers!
-jes

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