UPDATE: Dr. Got the ENTIRE tumor (had advanced more then he had thought) and he said the rhinoplasty went great as well! BAD news: she's having a hard time nursing :/ as soon as she latches on she screams and turns her face and trys to pull at her nose! (Any body who knows our girl KNOWS she doesn't miss a meal, shoot she doesn't even miss a snack.) So her not wanting to eat... My heart feels absolutely BROKEN! Seeing her little nose all bandaged up and then hearing her cry... I hate seeing her like this. I HATE that I can't just fix it all for her and take all this pain away! :( AND if all that weren't enough... Being in this hospital only reminds me of being ROBBED of her first 2 weeks of life. I thought I had gotten over the entire NICU journey... But as it turns out... I haven't. I am still upset! Maybe it wouldn't be so hard if we could just catch a break! If getting prego wasn't a hard enough journey on it's own... Our complication FILLED pregnancy THEN emergency c sec and prematurity! :( I HATE that she has had to go through so much!! On a different note (because YES I am well aware I just complained and whined this entire entry) I am more proud then EVER to be Adisyn's mama! This baby is HONESTLY the strongest person I've ever met!! YET STILL she continues to defy ALL odds... She is such a miracle! I can't wait to see what God will continue to do in her life. Please remember to keep our baby bear in your prayers!
-jes

-Sent from my iPhone

*It's Tuesday- AGAIN*

Tuesdays are "Dr.Witts" days. (Adisyn's plastic surgeon) Who we absolutely LOVE! He is such an amazing Dr. On the down side he is at the Children's hospital. Which makes me feel physically sick to be. The way it looks and feels brings me back to Adisyns NICU stay. (The most horrifying down right most awful time of my life.)
     Her tumor "experience" has been one of a kind. Day time: She does ok, a little trouble nursing but all in all "tolerable." Come night time, shes a different baby! Saying I don't sleep is an understatement. She can only breath through ONE side of her nose. Which may not sound too bad. Plug one side of your nose and see how it feels. AWFUL! I did it for less then 30 seconds and started breathing fast feeling :yuck: But the Dr. says every Tuesday he sees her is "another week we win." Only when Ady J attempts to nurse she looks as if shes drowning which doesn't feel like much of a win to me. I HATE not beeing able to do much for her. Seeing her like that breaks my heart. So... Till next Tuesday... This Mama Bear will just have to stand post.
Ending on a positive note... I am headed to Wally World, attempting to (get paid to shop) Oh how I LOVE to coupon! Pictures to follow ;)

To bring you up to speed!

We tried AND we tried for our baby bear! But boy did we not know what we were in for. We thought the hard part was getting prego? Guess again... After many heart breaking pregnancy complications and a emergency C-sec.

There was the two week NICU Stay:

Life in the NICU...

Wednesday, May 11, 2011 at 12:24pm 

Sorry for the lack of updates! It's been mighty insane over here lately! So they just took Adisyn off oxygen to see how she does. She's still under the "lights" for her jaundice. And is being such a strong girl!! Sounds like AMAZINGLY enough her kidney didn't suffer to much damage after being under all that pressure! And the craziest part yet is her heart seem fine!!! :) for all that has happened the dr says she is speechless to comment on how well ady is doing! She says she can't understand how the heart and kidneys aren't causing her major problems like the ultrasounds had said... But we will take it!! With all that being said... This is by far the roughest time in our little families life!! Saying I am emotional would be the biggest understatement I could make! Leaving ady every night is something I wish no one would even have to hear how horrible is!! The fact that she is not in my belly and not in my arms is awful!!! I have learned to live life on a 3 hour schedule.. Feed and change Adisyn for an hour, pump, sit with ady. Leaving me an hour to sleep eat or do anything else! 

Current-

Here she is! Adisyn Jessica Alvarez... (She got her middle name from her Auntie Jessie And Me)

She is doing so much better then what was expected! And continues to defy ALL odds ;) AND weighs a WHOPPING 14 pounds! So much for being a preemie. She was born at the 5% and is now somewhere in the 80's!  Though  STILL her battle continues... She has a tumor on the inside of her nose that is growing upward! We have been meeting a plastic surgeon every week to monitor growth. SO with ALL that being said please keep our baby bear in your prayers!